Patient & Family Involvement
Listed below are the most current and relevant research resources on patient and family involvement. For a complete list of all the resources ever listed on this page, view the MIPS TIPS Research Digest complete list of patient & family involvement resources.
REPORTS
In the spring of 2008, the US’s Institute for Family-Centered Care and the Institute for Healthcare Improvement (IHI) released the report Partnering with patients and families to design a patient and family-centered care health care system: recommendations and promising practices . Its purpose is to provide guidance for advancing patient- and family-centered care, and creating partnerships with patients and families in quality improvement and health care redesign.
Health Literacy: A Prescription to End Confusion is the Institute of Medicine’s 2004 report on the problem of low health literacy and prospective solutions.
ARTICLES
Comparing patient-reported hospital adverse events with medical record review: do patients know something that hospitals do not? Abstract
Patients report many serious and preventable events that are not documented in the medical record. Hospitals should consider asking patients about adverse events during the discharge interviews.
Brief Report: Hospitalized patients’ attitudes about and participation in error prevention. Full Text
Most patients were comfortable asking many, though not all, questions of caregivers.
Empowering older patients to communicate more effectively in the medical encounter. Abstract
Interventions successfully encouraged older patients to become more confident and actively involved in their interactions with physicians.
Patient participation in medical consultations: why some patients are more involved than others. Abstract
Patient characteristics affected their level of participation, but the physician’s communication style was even more important.
The Care Transitions Intervention: Results of a randomized controlled trial. Abstract
When chronically ill patients and their caregivers were coached to take a more active role during transitions between healthcare settings, costs and rehospitalization rates declined.
HEALTH LITERACY
Misunderstanding of Prescription Drug Warning Labels Among Patients With Low Literacy. Abstract
Warning labels with multiple-step instructions, difficult or unclear text, confusing icons, and arbitrary colours were frequently misunderstood.
Health Literacy, Medication Errors, and Health Outcomes: Is there a relationship? full text
Low health literacy is related to poor health outcomes, but medication errors may or may not be implicated.
